Planning Ahead

Caregivers need care, too.

Whether it is caring for someone full time or helping them find a place where they can maintain their independence and dignity, taking responsibility for a loved one means making changes in your lifestyle. It can often be a lonely and confusing time.

Finding Support

Caregiver support groups provide emotional support, information sharing, and companionship for caregivers. Some groups offer a specialized focus, such as providing care to someone with Alzheimer’s Disease. To join a support group, contact www.caregiving.com.

For a list of helpful fact sheets, contact the Family Caregiver Alliance. Another organization that exists to support family caregivers and to speak out publicly for caregivers' needs is the National Family Caregivers Association (NFCA).

Caring for yourself

Taking steps to care for yourself, emotionally and physically, will help you avoid becoming overwhelmed and resentful. Some things to consider:

• Remember your own needs - Allow yourself time away from your role as caregiver to enjoy activities that are important and relaxing to you. Instead of feeling guilty, remind yourself that you are becoming a better caregiver by taking care of yourself.
• Share decision making when possible - Involve the individual being cared for in the decision-making process. Making them an active partner will help them maintain a sense of independence while allowing yourself to share some of the burden.
• Involve family and friends - You'll be surprised at how many people are willing to help...if you only ask. Host a family meeting to discuss sharing responsibilities.
• Learn about the situation - By researching and gathering information about the specific disease or conditions of your loved one, you'll be better able to plan for the future, including making arrangements if something were to happen to you. Discuss your plans with other family members, the earlier the better.
• Talk to someone - Use a friend away from the situation to use as an impartial sounding board. Share your reactions.